Volume 16, Issue 2 (9-2018)                   sjsph 2018, 16(2): 148-163 | Back to browse issues page

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Heidari A, Arab M, Etemad K, Damari B, Lotfi M. National Phenylketonuria Screening Program in Iran; Why and How. sjsph. 2018; 16 (2) :148-163
URL: http://sjsph.tums.ac.ir/article-1-5645-en.html
1- Ph.D. Health Management and Social Development Research Center, Golestan University of Medical Sciences, Gorgan, Iran
2- Ph.D. Professor, Department of Management and Health Economic, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran
3- Ph.D. Assistant Professor, Department of Epidemiology, Environmental and Occupational Hazards Control Research Center, Faculty of Public Health, Shahid Beheshti University of Medical Sciences, Tehran, Iran
4- Ph.D. Assistant Professor, Department of Social Determinant of Health, National Institute of Health Research, Tehran University of Medical Sciences, Tehran, Iran
5- MSc. Vice Chancellery for Research, Tehran University of Medical Sciences, Tehran, Iran
Abstract:   (2283 Views)
Background and Aim: The purpose of phenylketonuria (PKU) screening is to assess the risk of, and prevent, the disease in the newborns likely inflicted with it. The aim of this study was to investigate why and how PKU screening was decided to be included in the national health agenda, initiated and implemented in Iran.
Materials and Methods: This qualitative study was conducted based on the Kingdon’s framework model in 2015. The participants were thirty-eight policy-makers, managers and researchers selected by purposeful sampling.Data were collected using semi-structured interviews and analyzed using framework analysis.
Results: The physical and mental disabilities, medical and maintenance costs and the need for rehabilitation services were examples of the problem stream. In addition, sampling based on the National Congenital Hypothyroidism Program and implementation feasibility at the national level were examples of the policy stream. Finally, pressure by the patientschr('39') families, the Scientific Children Association and executive managers were examples of the political will stream. When the three streams occurred simultaneously, health policy-makers agreed to implement the program and then was opened the window of opportunity.                                                                                                          
Conclusion: Successful implementation of the National Phenylketonuria Screening Program in Iran has been the result of interactions among three streams, namely, nature of the problem, political will and optimal use of policy-makers of the window of opportunity opened.
Full-Text [PDF 1038 kb]   (2072 Downloads)    
Type of Study: Research | Subject: Public Health
Received: 2018/09/18 | Accepted: 2018/09/18 | Published: 2018/09/18

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